Task Force to Study Rare Diseases
Sec. 23. Section 35 of public act 15-242 is repealed and the following is substituted in lieu thereof (Effective from passage):
(a) There is established a task force to study rare diseases. The task force shall (1) examine research, diagnoses, treatment and education relating to rare diseases, and (2) make recommendations for the establishment of a permanent group of experts to advise the Department of Public Health on rare diseases. For purposes of this section, "rare disease" has the same meaning as provided in 21 USC 360bb, as amended from time to time.
Contact
- c/o Public Health Committee
- Legislative Office Building, Room 3000
- Hartford, CT 06106
- (860) 240‑0560
Task Force to Study Rare Diseases
Information
Documents and Meetings
October 10, 2018
January 19, 2018
- Agenda
- Balancing the System_2016 Report Highlights
- CT Rebalancing Summary 2017_FINAL
- Holly LaPrade ifopa
- Intensive Care Management Rare Disease TF Presentation Husky and DSS
- legislature_Germain_Lee_Jan_19_18
- Long-Term Care Plan - 2016
- Office of the Healthcare Advocate Presentation by Ted Doolittle
- Rare Disease 01-19 Meeting Summary
- Scleroderma Mary Beth Bobik-Kadylak
December 8, 2017
November 17, 2017
October 20, 2017
September 8, 2017
July 21, 2017
June 23, 2017
April 27, 2017
March 31, 2017
February 24, 2017
