Proposed S.B. No. 562
Session Year 2025

AN ACT CONCERNING FUNDING FOR THE CONNECTICUT RARE DISEASE ADVISORY COUNCIL.

To allow the Connecticut Rare Disease Advisory Council to collaborate with and accept funds from nonprofit entities.

Other Bills with Similar Topics

  Diseases 

 

• HB05423 - AN ACT DESIGNATING NEUROFIBROMATOSIS AWARENESS DAY.
• HB05625 - AN ACT CONCERNING AID IN DYING FOR TERMINALLY ILL PATIENTS.
• HB05710 - AN ACT REQUIRING NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY.
• HB05883 - AN ACT CONCERNING IMPLEMENTATION OF THE CENTERS FOR DISEASE CONTROL AND PREVENTION'S WHOLE SCHOOL, WHOLE COMMUNITY, WHOLE CHILD FRAMEWORK.
• SB00086 - AN ACT CONCERNING INCOME ELIGIBILITY FOR MEDICAL HARDSHIP PROGRAMS WITH GAS OR ELECTRIC DISTRIBUTION COMPANIES.
• SB00566 - AN ACT CONCERNING RARE DISEASE PATIENTS.
• SB00801 - AN ACT CONCERNING THE EXPANSION OF THE KATIE BECKETT WAIVER PROGRAM.
• SB00802 - AN ACT CONCERNING A COMPASSIONATE MEDICAID WAIVER PROGRAM FOR CHILDREN WITH RARE, PROGRESSIVE OR NEURODEGENERATIVE DISORDERS.
• SB00813 - AN ACT LIMITING THE USE OF STEP THERAPY FOR PATIENTS WITH DISABLING OR LIFE-THREATENING CHRONIC DISEASES.
• SB01067 - AN ACT CONCERNING PATIENT-SPECIFIC EMERGENCY HEALTH CARE PROTOCOLS FOR PERSONS WITH RARE DISEASES OR SPECIAL HEALTH CARE NEEDS.