Substitute House Bill No. 5765

Special Act No. 99-8

An Act Concerning a Pilot Children's Comfort Care Center.

Be it enacted by the Senate and House of Representatives in General Assembly convened:

Section 1. (a) Notwithstanding section 19a-491, 19a-638 or 19a-639 of the general statutes, the Department of Public Health and the Office of Health Care Access shall permit Sunshine House, Inc. to establish a pilot program creating a freestanding children's comfort care center to provide comfort care for children with limited life expectancy and their families. Such care may include, but need not be limited to: (1) Respite care for such children and their families, such respite care being available to families intermittently during the course of their child's illness; (2) end-of-life care for children that includes whole child care in a child-centered, family-oriented, home-like setting for families who need a home-like option other than home; and (3) whole family care consisting of supportive care for the whole family including accommodation for parents, specialized support for siblings and others important to the child and bereavement support.

(b) On or before January 3, 2001, the Department of Public Health shall report to the joint standing committee of the General Assembly having cognizance of matters relating to public health, in accordance with the provisions of section 11-4a of the general statutes, on the status of the pilot program established under subsection (a) of this section. Sunshine House, Inc. shall cooperate with the department on the development of standards for the pilot program. The report shall include, but need not be limited to, recommendations on the need for state agency regulation, if any, of places such as that established under subsection (a) of this section.

(c) On or before January 3, 2001, the Office of Health Care Access shall report to the joint standing committee of the General Assembly having cognizance of matters relating to public health, in accordance with the provisions of section 11-4a of the general statutes, on the status of the pilot program established under subsection (a) of this section. Sunshine House, Inc. shall cooperate with the office in its study of the pilot program. The report shall include, but need not be limited to, recommendations on whether places such as that established under subsection (a) of this section require a certificate of need under chapter 368z of the general statutes.

(d) The pilot program established under this section shall terminate September 30, 2001.

Sec. 2. This act shall take effect from its passage.

Approved June 3, 1999

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